Surveys

Report from a global psychosocial virtual focus group Introduction A virtual focus group consisting of individuals who provide psychosocial care in five GLCC member countries/regions was held July 13, 2023. Facilitated by CancerCare social worker Charlotte Ference with the aid of Evoke Incisive Health, the discussion focused on four main questions, with additional questions raised […]

Introduction Improving patients’ experience of their treatment and care is an important issue for the GLCC and its members. There is, however, little data comparing patient experience between countries. For the last four years, therefore, the Global Lung Cancer Coalition (GLCC) has run an annual global patient experience survey, gathering a wealth of useful data […]

Introduction The Global Lung Cancer Coalition (GLCC) has run a series of surveys into the global patient experience, gathering a wealth of useful data and insights on experiences of diagnosis, treatment and care. The findings from these surveys shine a light on the needs and preferences of patients, informing GLCC’s global activity and members’ campaigning […]

The pandemic which began to impact globally early in 2020 changed the landscape of healthcare provision and has had a particular and last impact on lung cancer care and provision. These materials were assembled by the GLCC at the relevant time and can now be viewed as snapshots of the global experience of that era. […]

Coping With Lung Cancer: Report from a global psychosocial virtual focus group What provisions are made for people living with lung cancer to help them deal with the real-life impact of their condition? A diagnosis of lung cancer can have wide-ranging impacts on the psychological health of a person and their various roles in life. […]

  People feel a range of emotions when they receive a lung cancer diagnosis and throughout their treatment and care journey. To find better ways to help them cope and get through treatment with less stress and anxiety, the GLCC wanted to understand the emotions that patients feel at key moments. To understand more about […]

Lung Cancer: A World View – 2022  A GLCC project to understand the campaigning priorities in lung cancer at a national level Introduction The GLCC serves as the international voice of people affected by lung cancer. Member organisations have a key focus on lung cancer advocacy, and an important function of the GLCC is bringing […]

Background The aim of this aspect of the Coping with Lung Cancer project is to: Augment existing knowledge and identify global gaps in psychosocial care by surveying member organisations Develop a repository of psychosocial oncology care available across the world Identify subject matter experts to interview for best practices library Methods A 22-question mixed-methods survey […]

Third GLCC survey of patients’ experience during COVID-19 pandemic (NB: data gathering started December 2021, results published 2022).    The GLCC wanted to understand if COVID-19 is still impacting the care patients receive, and to compare the experiences of patients in different countries. Findings will inform our global and national campaigning priorities. Therefore, in December […]

Introduction Improving patients’ experience of their treatment and care is an important issue for the GLCC and its members. There is, however, little data comparing patient experience between countries. In 2020 we therefore set out to gain insights into patient experience, working with our network of patient advocacy groups to share a multi-national online survey […]

Insights from the Global Lung Cancer Coalition’s 2021 patient experience survey September 2021 Background The GLCC) is dedicated to improving outcomes for lung cancer patients. Our members collaborate and campaign to improve lung cancer patients’ experience of their treatment and care, both at a national level and globally. To do this we need to understand […]

The continued impact of COVID-19 on patient advocacy and support organisations: findings from the second GLCC members survey Patient advocacy and support organisations like the members of the Global Lung Cancer Coalition (GLCC) support thousands of patients worldwide. Our members are continuing to work incredibly hard to offer advice and support to lung cancer patients […]

Introduction Improving patients’ experience of their treatment and care is an important issue for the GLCC and its members. There is, however, little data comparing patient experience between countries. In 2020 we therefore set out to gain insights into patient experience, working with our network of patient advocacy groups to share a multi-national online survey […]

Impact of COVID-19: findings from a GLCC members survey Patient advocacy and support organisations like the members of the GLCC engage with thousands of patients worldwide. Our members are working hard to support lung cancer patients through the COVID-19 pandemic and, in some cases, doing this with decreased resources. It is essential that policymakers recognise […]

Maximising impact on social media: insights for advocates from global research on social media engagement – September 2020 Introduction Social media channels are increasingly important for advocacy, with billions of people active on social media around the world. They have also proven to be an effective way for patient organisations to communicate with patients during […]