Understanding the diagnosis, treatment and care experiences of people living with lung cancer

Insights from the GLCC’s 2025 global patient experience survey
Introduction
For the last six years, the Global Lung Cancer Coalition (GLCC) has run an annual global patient experience survey, gathering a wealth of useful data and insights on experiences of diagnosis, treatment and care.
The findings from this survey shine a light on the needs and preferences of patients, informing GLCC’s global activity and members’ campaigning priorities. The GLCC additionally hope the findings will be useful to policymakers in their planning, as well as to campaigners advocating for lung cancer patients’ needs around the world.
This report sets out the global findings from the 2025 global survey, which ran from 02 May 2025 to 12 May 2025 and received 900 responses from patients across 18 countries.
The GLCC is grateful to all the patients who took the time to share their experiences via the survey.
Key findings & common themes
As stated in our patient charter, the GLCC believes that every patient has the right to have access to quality health care; informed self-determination; physical and mental integrity; confidentiality and privacy, and to be treated with dignity and respect.
Whilst each patient’s experience and preferences during their lung cancer journey differ, some common themes emerge across different geographies and health systems.
This year’s patient experience survey highlighted some encouraging trends including patients feeling involved in their treatment and care, the majority receiving information at appropriate times, and support generally matching patients’ needs.
However, the survey’s results also showcase key areas for improvement. There is a clear need to strengthen communication to patients around key aspects of care – especially regarding diagnostic testing and the implications of different results. Additionally, treatment and support teams should be encouraged and supported to accommodate patient preferences throughout all aspects of care.
Our Global Report into the findings from our 2025 survey can be viewed and downloaded here:
Excel spreadsheet outlining questions asked and patients’ responses
The following national infographics can be downloaded in pdf format: