RET Positive (US based, international reach)
RETpositive is a patient-driven nonprofit that aims to improve the quality of life and life expectancy of RET-positive cancer patients by raising awareness, providing patient and caregiver support, and funding medical research for RET-driven cancers.
RET-positive cancer is caused by a mutation or abnormal re-arrangement of the RET gene. It occurs most commonly in lung cancer and several types of inherited and sporadic thyroid cancers. RET alterations also occur in an estimated 1-2% of multiple other cancers, including ovarian, pancreatic, salivary, breast, and colorectal cancers.
Offers information, community, and hope via private Facebook support groups: RETpositive, open to patients and caregivers dealing with any RET-driven cancer, regardless of tissue of origin, and LUNGevity RET Renegades.
Website: https://www.retpositive.org/
From the RET Positive online blog/newsletter:
RETpositive at LUNGevity’s Fall Science Meeting: New Momentum for RET‑positive Cancer Research
RET Renegades (USA based, international reach)
A project of LUNGevity, “RET Renegades” shares resources for lung cancer patients impacted by the RET mutation. Information, resources and advocacy can be found at their private Facebook group, open to people with RET+ lung cancer.
