BRAF Groups

BRAF Bombers (US based, international reach)

A patient-driven organisation for BRAF positive patients, survivors and their loved ones.

From their website:

“Mission: BRAF in lung cancer is one of the rarer mutations. There are powers in numbers and there is power in information so the concept here is to share and help one another with treatments and side effects and support one another in whatever ways needed.”

“The aim is to bring together research, information and hope for all with a BRAF biomarker.”

It strives to inspire comfort, hope, and community to fight in common battle. BRAF Bombers aims to provide knowledge of education and resources, including clinical trials, for cutting edge therapies.

Offers links to several lung cancer organisations including three of our US members, CancerCare, Go2 Foundation for Lung Cancer, and Lung Cancer Research Foundation.

BRAF Bombers site: https://www.brafbombers.org/

Also has a members-only Facebook group, but anyone with BRAF+ lung cancer is welcome to join: https://www.facebook.com/groups/1077213015965166/

 

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