Exon20 Group (USA based, global reach)
A special initiative of ICAN, International Cancer Advocacy Network
Focus is on EGFR/HER2/Exon20 insertion mutations group of NSCLC
“Mission statement:
Improving Survival and Quality of Life, One Patient at a Time”
From their website:
“The Exon 20 Group is a laser-focused, multi-stakeholder, global coalition of patients, care partners, family members, thoracic/medical oncologists, scientists, molecular profiling labs, and pharmaceutical companies and biotechs with the mission of converting exon 20 insertion mutations into chronic diseases and then curing them.
Membership in the Exon 20 Group is FREE, but they carry out “onboarding” of each patient first before they can join the community.”
Currently recruiting new members for:
- Exon 20 Group-Australia/New Zealand
- Exon 20 Group-Canada
- Exon 20 Group-China
- Exon 20 Group-France
- Exon 20 Group-Germany
- Exon 20 Group-India
- Exon 20 Group-Israel
- Exon 20 Group-Italy
- Exon 20 Group-Japan
- Exon 20 Group-Jordan
- Exon 20 Group-Latin America
- Exon 20 Group-The Netherlands
- Exon 20 Group-Nordic Region
- Exon 20 Group-South Africa
- Exon 20 Group-Spain
- Exon 20 Group-United Kingdom
Support group for patients with EGFR Exon 20 insertions/HER2 Exon 20 insertions in lung cancer and other solid tumors, linked to the ICAN (International Cancer Advocacy Network) as above.
