EGFR (Epidermal Growth Factor Receptor) is a protein involved in cell growth and division. In some non-small cell lung cancers (NSCLC), mutations in the EGFR gene can lead to overexpressed EGFR, causing uncontrolled cell growth and potentially cancer. EGFR mutations are a common target for specific targeted therapies called tyrosine kinase inhibitors (TKIs).
EGFR+ UK
EGFR Positive UK is a registered charity established by patients and their families and friends in 2019. It aims to improve the overall survival and quality of life of EGFR-positive lung cancer patients across the United Kingdom.
The charity provides information and support for EGFR-mutated lung cancer patients and their families through its patient-led support group. It also supports research to change EGFR positive lung cancer into a chronic disease that can be managed long-term and raises awareness of the disease.
From their website:
“EGFR Positive UK is a patient-driven charity committed to providing information and support for EGFR-mutated lung cancer patients and their families.
We are also dedicated to supporting research and advocacy to change EGFR positive lung cancer into a chronic disease that can be managed long-term.
We work to raise awareness of EGFR positive lung cancer and end the stigma associated with lung cancer in general.”
“We know that anyone with lungs can get lung cancer – young or old, smoker or never-smoker.”
Has links with Roy Castle Lung Cancer Foundation, Asthma + Lung UK, and Lung Cancer Nursing UK.
https://www.egfrpositive.org.uk/
EGFR Resisters (USA based, global reach)
A patient- driven community dedicated to improving outcomes for people with EGFR positive lung cancer. The goal of the EGFR Resisters is to improve outcomes for people with EGFR+ lung cancer by accelerating research. Their vision is to change EGFR+ lung cancer into a manageable chronic disease. A key part of their mission is to continue to raise awareness of EGFR+ lung cancer and to address critical and clinical research gaps.
From their website:
“We are a grassroots patient-driven community, dedicated exclusively to changing EGFR positive lung cancer into a manageable chronic disease.”
“Our community of survivors and caregivers benefit from sharing knowledge and connecting with others who are experiencing similar journeys.
Caregivers are also welcome. The group shares treatment experiences, information about clinical trials, breaking news about research developments, and other information.”
Offers links to other organisations, including Go2 Foundation for Lung Cancer, Lung Cancer Research Foundation and IASLC.
